Purpose
The Cerebral Palsy Profile of Health and Function (CP-PRO) Computerized Adaptive Tests
(CAT) are quality of life measures developed specifically for use in children with
cerebral palsy. This study examined the ability of the upper-extremity (UE) CP-PRO
CAT to detect change in function after UE surgery compared with the Pediatric Outcomes
Data Collection Instrument (PODCI), ABILHAND-Kids, and Box and Blocks test.
Methods
From 2009 to 2013, children with cerebral palsy who had UE musculoskeletal surgery
completed the UE CP-PRO CAT, PODCI-UE, ABILHAND-Kids, and Box and Blocks tests before
surgery (97 children) and at 3 postoperative intervals: 6 months (80 children), 12
months (73 children), and 24 months (52 children). Mean, SD, effect size (ES), and
standardized response mean (SRM) values for each measure at each time interval and
each level of the Manual Ability Classification System were calculated and compared.
Finally, the minimal detectable change at the 90% confidence level was determined.
Results
Values for the ES (0.40) and SRM (0.53) for the UE CP-PRO CAT at baseline to 6 months
were moderate and significantly greater than the PODCI-UE (ES, 0.18; SRM, 0.25). The
ES and SRM for the PODCI-UE, ABILHAND-Kids, and Box and Blocks tests were not significantly
greater than for the UE CP-PRO CAT at any period. From baseline to 6 months, the UE
CP-PRO CAT detected a large and significant improvement for Manual Ability Classification
System level II (SRM, 0.70; ES, 0.70). The minimal detectable change for the UE CP-PRO
CAT was 5.20.
Conclusions
The UE CP-PRO CAT is significantly better in detecting change in UE function in the
first 6 months after surgery and is comparable to other measures at 12 and 24 months.
Type of study/level of evidence
Diagnostic II.
Key words
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Article info
Publication history
Published online: February 04, 2019
Accepted:
December 7,
2018
Received:
May 6,
2018
Footnotes
No benefits in any form have been received or will be received related directly or indirectly to the subject of this article.
Identification
Copyright
© 2019 by the American Society for Surgery of the Hand. All rights reserved.
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